Provider Training & Toolkit

Promoting Health Equity for Children & Youth with Special Health Care Needs

Live Training Resources

Live Dental Provider Training (1 hour & 2 hour options with CE credits): “The Importance of a Dental Home for Children & Youth with Special Health Care Needs. (CYSHCN)”

Contact: Debbye Krueger Debbye.Krueger@dhhs.nc.gov
Lauren Howard Lauren.Howard@dhhs.nc.gov

Live Community Engagement & Empowerment Team/Division MH/DD/SA Services: “Dignity of Risk” presentation (focus on recommendations for communication)

Contact: CEandE.staff@dhhs.nc.gov

Online Training Resources/Children with Special Health Care Needs

Online Making Connections: The Critical Role of Family-Centered Care in Addressing Social Determinants of Health for Children and Youth with Special Health Care Needs The National Resource Center for Patient/Family-Centered Medical Home (NRC-PFCMH) implemented this educational webinar series in partnership with Bright Futures National Center and the Screening Technical Assistance (STAR) Center. Provides information about the impact of social determinants of health (SDOH) on CYSHCN and their families, including implementation strategies for addressing SDOH for CYSHCN by using components of the medical home model.

https://medicalhomeinfo.aap.org/tools-resources/Pages/WebinarsPodcasts.aspx

a) Episode 1 (How CYSHCN are impacted by SDOH and review of current data

b) Episode 2 (Two states discuss how they are addressing SDOH for CYSHCN)

Learning Objectives

Describe data trends related to the impacts of SDOH on CYSHCN
Increase understanding of the medical home model in addressing SDOH for CYSHCN at the state, community and clinical levels
Identify strategies being implemented by state MCH Title V/CYSHCN programs, families, and primary care pediatricians to address SDOH for CYSHCN by using components of the medical home model.

Culturally Competent Care for CYSHCN

Providing culturally competent care is a way to address health equity for CYSHCN

https://medicalhomeinfo.aap.org/tools-resources/Pages/For%20Practices.aspx

Click “Culturally Competent Care” – Below are a few of the resources available at this link to help with implementation and enhancement of culturally competent care:

Language Access in Pediatric Primary Care
Strategies to Enhance Access to Pediatric Medical Homes for Hispanic Communities
Health Equity Resources for Pediatric Clinicians
Signage for Multilingual Healthcare Settings

“A family’s cultural background – including beliefs, rituals, and customs- are recognized, valued, and respected within a pediatric medical home. All efforts are made to ensure that the child or youth and family understand the details of the medical encounter and the care plan.”

Transition to Adult Care for CYSHCN

Promote successful transition from pediatric to adult health care to improve access to health care as they reach adulthood with a disability

https://medicalhomeinfo.aap.org/tools-resources/Pages/For%20Practices.aspx

Click “Transition to Adult Care” – Health care transition is the process of moving from a child to an adult model of care with or without transfer to a new clinician. Below are a few of the resources available at this link that pediatricians can use to support youth transitioning from pediatric to adult care:

Six Core Elements of Health Care Transition 3.0: Transitioning Youth to an Adult Health care Provider
Pediatric to Adult Care Transitions Initiative: Customized Tools for Diseases and Conditions
Free CME Podcast: Transitioning Pediatric Patients to Adult Health Care
Free CME Video Series: Health Care Transition for Adolescents and Young Adults
Telehealth Toolkit for a Joint Visit with Pediatric and Adult Health Care Clinicians and Transferring Young Adults

Condition Specific Resources for Transition to Adult Care for CYSHCN

Transition to Adulthood: A Health Care Guide for Youth & Families Guide developed by the Autistic Self Advocacy Network to help young people and their families plan for the transition to adulthood in health care contexts. https://autisticadvocacy.org/wp-content/uploads/2014/07/ASAN-healthcare-toolkit-final.pdf

Promoting Health Equity for Children & Adults with Disabilities

Online Training Resources

Online Core Competency Modules on Disabilities/The Ohio State University- Nisonger Center: Disability Healthcare Training addresses Healthcare Access for People with Disabilities. These courses are designed to increase the capacity of health care providers to provide quality healthcare for persons with disabilities. The trainings present various disability issues, serving to strengthen participants’ competence in physical/sensory and developmental disabilities.

https://nisonger.osu.edu/education-training/ohio-disability-health-program/disability-healthcare-training/ (approved for CE by the CDC for physicians, nurses, certified health education specialists and other health professionals)

a) Part 1: People with Physical and Sensory Disabilities
b) Part 2: People with Developmental Disabilities

Training Objectives:

Define developmental disabilities.
Summarize the Americans with Disabilities Act, Developmental Disabilities & Bill of Rights Act of 2000, and the Rehabilitation Act.
Identify five common developmental disabilities and associated secondary conditions.
List five barriers to quality healthcare for people with disabilities.
Demonstrate effective team skills by sharing information effectively, listening and responding to feedback from others, and using simple communication.

Online Disability Core Competency for Health Care Providers (E-Learning Modules for Health Care Providers): Vermont Healthcare Innovation Project

https://360.articulate.com/review/content/24573397-4c25-47b0-9ee7-1f41a35f2879/review

Disability Core Competency Tool Kit (accompanies above training)

https://healthcareinnovation.vermont.gov/sites/vhcip/files/documents/Disability%20Core%20Competency%20Tool%20Kit.pdf (Disability Core Competencies Toolkit – contains good information although some resource links are no longer working

Public Health Workforce Competencies – Including People with Disabilities (association of University Centers on Disabilities)

Learning Modules were created to provide public health professionals with foundational knowledge on disabilities, and provide competencies to assist with the inclusion of people with disabilities into public health planning and health promotion efforts.

https://disabilityinpublichealth.org/learning-modules/

Additional Resources & Toolkits

Health Care for Adults with Intellectual & Developmental Disabilities – Toolkit for Primary Care Providers (created by the Vanderbilt Kennedy Center)

https://iddtoolkit.vkcsites.org/

Adults with intellectual or other developmental disabilities face a cascade of health disparities. They often:

have complex or difficult-to-treat medical conditions
have difficulty accessing health care
may receive inadequate health care
may have difficulties expressing their symptoms and pain
receive little attention to wellness, preventive care, and health promotion

Yet these adults deserve quality, patient-centered health care as well as the general population. This toolkit was created to address these issues.

Resources for Core Competencies on Disability for Health Care Education
Provides more information about health disparities for people with disabilities and the need for educational standards.

https://nisonger.osu.edu/education-training/ohio-disability-health-program/core-competencies-disability-health-care-education-toolkit/

Strategies for Promoting Health and Health Equity for Those You Serve with SHCN or Disabilities

Accessibility: Provide welcoming spaces by participating in an accessibility survey to determine possible barriers and ways to create a more welcoming space
Increase Awareness of Health Disparities: Educate others in your organization or circle of influence about the health disparities experienced by CYSHCN and adults with disabilities, and the barriers they face in trying to access health care.
Disability Etiquette: Provide staff training on Disability Etiquette and use of "Person First Language" when caring for those with disabilities.
Communication/language proficiency: Increase awareness of effective communication methods for those with limited verbal and/or cognitive skills in a health care setting.
Culturally effective care: Seek to understand the “culture of disability” including the values and needs of those with disabilities*, encourage self-advocacy skills for those with special health care needs or disabilities. *use an intersectional framework
Health Care Transition: Adopt written health care transition policy for practice regarding the transition process from pediatric to adult model of health care; Adopt use of a health care transition checklist to promote transition from pediatric to adult model of care and improved access to health care as an adult with a disability

Accessibility:

The ADA and Health Care Providers: https://northeastada.org/resource/the-ada-and-health-care-providers: Article introduces basic Americans with Disabilities (ADA) requirements for health care providers.
Health Care and the Americans With Disabilities Act (ADA): https://adata.org/factsheet/health-care-and-ada: This fact sheet provides information regarding reasonable modifications of policies, practices and procedures, effective communication and accessible facilities.
A Primer for Providers: Modernizing Health Care to Improve Physical Accessibility: https://www.cms.gov/files/document/cmsmodernizinghealthcare.pdf: This resource helps staff in health care settings improve quality, satisfaction, and physical accessibility for people with disabilities. This primer offers strategies and resources to remove barriers and deliver high-quality, patient-centered, physically accessible care for individuals with disabilities.
Resource Inventory: Modernizing Health Care to Improve Physical Accessibility – https://www.cms.gov/About-CMS/Agency-Information/OMH/Downloads/OMH-Modernizing-Health-Care-Physical-Accessibility.pdf: The resources in this inventory include guidance on how to increase physical accessibility of medical services, tools to assess your practice or facility's accessibility, and tips and training materials to support efforts to reduce barriers and improve quality of care for individuals with disabilities.
Web Based Training – Modernizing Health Care to Improve Physical Accessibility https://www.cms.gov/Outreach-and-Education/MLN/WBT/MLN9033809-Physical-Accessibility/OMHPA/omh-modernizing-healthcare/index.html: This free web-based training course offers solutions for increasing the physical accessibility of health care settings and services for people with disabilities.
Accessibility Review – The North Carolina Office on Disability and Health offers a free on-site accessibility review to for health care facilities and dental offices in North Carolina Contact Lauren Howard, Director/NC Office on Disability & Health regarding ways to create a more welcoming space for your patients Email: Lauren.Howard@dhhs.nc.gov

Effective Communication:

Effective Communication for Health Care Providers - https://www.cds.udel.edu/wp-content/uploads/2017/02/effective-communication.pdf: Covers all areas related to providing effective communication in a health care setting
Hearing Loss Communication Guides https://covid19.ncdhhs.gov/information/individuals-families-and-communities/wellness-resources/hearing-loss-communication-guides: Hearing Loss Communication Guides are available through the NC Division of Services for the Deaf and Hard of Hearing

Health Literacy

Accessible Print Materials: Guidelines to Accommodate People of All Abilities - https://publichealth.nc.gov/wch/doc/providers/AccessiblePrintMaterialsUpdatedLogo-2016.pdf: A brochure that provides guidelines for creating materials that are accessible and useable.
Plain Language Materials & Resources - https://www.cdc.gov/healthliteracy/developmaterials/plainlanguage.html: Information from the Centers for Disease Control on Plain Language Resources.
Ask Me 3: Good Questions for Your Good Health - http://www.ihi.org/resources/Pages/Tools/Ask-Me-3-Good-Questions-for-Your-Good-Health.aspx: Educational program that encourages patients and families to ask three specific questions of their providers to better understand their health conditions and what they need to do to stay healthy.

Additional Resources for Accessible Language

Web Accessibility https://webaim.org/
Microsoft Accessibility https://www.microsoft.com/en-us/accessibility
Contrast Checker https://webaim.org/resources/contrastchecker/

Health Disparities Awareness

Toolkit for Primary Care Providers: Health Care for Adults with Intellectual and Developmental Disabilities (also noted above) - https://iddtoolkit.vkcsites.org/
Oral Health & Health Equity Infographic - https://nihcm.org/publications/oral-health-health-equity

Additional Resources

Emergency Preparedness

Emergency Kit Checklist for Families with CYSHCN - https://www.cdc.gov/childrenindisasters/checklists/special-healthcare-needs.html - Checklist from the Centers for Disease Control for families of CYSHCN
Disaster Recovery Project - https://disabilityrightsnc.org/what-we-do/our-advocacy-work/disasters#disastertools: Disability Rights North Carolina’s Disaster Recovery Projects helps people with disabilities who have been impacted by a disaster, such as a hurricane or flood.
Emergency Supply Kits https://adata.org/sites/adata.org/files/files/Emergency%20Supply%20Kits_final2018.pdf - Information from the ADA National Network – Information, Guidance and Training on ADA